“We knew our baby girl wasn’t well – but hearing the words cystic fibrosis (CF) was a whole new level of devastation”


It takes more than devoted parents to care for a baby with CF - it takes a community. Will you be a part of that caring community this Christmas?

The birth of a new baby is usually such a happy and exciting time. For parents expecting twins it can be even more exciting.

Nyssa and Cody’s twins arrived very early, at 33 weeks, amidst great anxiety. Their precious babies were immediately placed in humidicribs for five long weeks.

Finally the twins were well enough to come home, but the good news didn't last long. Baby Cole was putting on weight and feeding well. Sadly, it was a different story for little Norah. She was losing weight and showing other tell-tale signs of CF.

Life was about to change forever.

“We had one stressful week at home, and then our world fell apart. It was a terrible shock,” says Nyssa “CF is something we knew absolutely nothing about. Now it's our everyday and it will be for the rest of our lives.”

I’m sure you can imagine how heart-breaking that initial news was. That’s why we’re calling on our generous community to support all CF families this Christmas.

Will you please make a gift today?

Norah’s medication, food and physio is a major part of the family’s everyday routine. “Clearing her airways is a constant job. As well as physiotherapy at home, she has to take 14 doses of medication every day.

Cystic Fibrosis WA provides valuable and practical support for families and carers of a CF child. With a caring community around them, we can reduce the impact on a family.

As well as vital community connections, CFWA also provides around 5,500 home care visits each year, financial subsidies and equipment loans, mental health, youth programs and world-class online resources for families, teachers and students.

There is so much more to do...

Your Christmas gift today will reach families who seriously need a helping hand. Despite major medical advances, CF still takes young lives. Norah’s life will be very different to her twin – but with our support as a community we can make a difference.

In finishing, I send all my best wishes to you and yours this Christmas. Please remember, we really do rely on you at this time of year.

Yours sincerely.

Nigel Barker
Chief Executive Officer

P.S. Thank you again for your past generosity and the compassion you’ve shown for families like Norah’s. Please give a gift that will count this Christmas. Your support means so much to every CF family.

Cystic Fibrosis Western Australia

Cystic Fibrosis (CF) is a common life threatening recessive genetic condition which mainly affects the lungs and digestive system. People with CF often need to take up to 40 tablets per day, maintain daily physio and visit the hospital on a regular basis in order to stay as healthy as possible. Money raised will help Cystic Fibrosis WA to provide essential services for people who are living with CF and to deliver funding for critical research projects. Please help us to achieve our vision of "lives unaffected by CF".

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